Resultados para "Rara" en Crianza y familia

Patti M. Hall’s life is pitched into an abyss of uncertainty when a golf ball-sized tumour is discovered in her teenage son’s head and he is diagnosed with gigantism, a disease of both legend and stigma. After scrambling to access a handful of medical experts in the field, Patti learns that her son could grow uncontrollably, his mobility could be permanently limited, and his life could be cut short without timely and aggressive treatment. Patti’s attention shifts fully to her son, away from her relationships as well as her own career and health.

This new audiobook is third in a series of inspirational stories about fathers raising children with special needs. Rare Disease Stories from the SFN Dad to Dad Podcasts is a compilation of 12 stories told from the perspectives of fathers raising children with rare diseases. Each of the 12 chapters includes a heartfelt story by a father who has also agreed to serve as a Special Fathers Network (SFN) Mentor Father.

A New York Times Book Review Editors' Choice Kate Bowler's The Everything Happens Book Club Pick! Award-winning writer Heather Lanier's memoir about raising a child with a rare syndrome, defying the tyranny of normal, and embracing parenthood as a spiritual practice that breaks us open in the...

In a world that often defines success by traditional standards, "Sigma Females: The Rare Gems of Modern Success" highlights a special group of women who break the mold. This engaging book explores the lives of sigma females—independent, ambitious, and committed to their own paths.

It was Devin Galaudet’s job to take the ashes and pour them into the waters of Cadiz, Spain, after his father’s death. Carrying them across Spain by car, train, and backpack, this was their swan song, their “buddy picture” come to life. Half a mile from the Mediterranean, though, Devin lost his father’s ashes. Standing in the middle of a windy cobblestone street in Old Town Cadiz, he wondered what the hell just happened - not just in that moment, but the 40 years prior.

How would you like to be given a new identity to live by and then removed from your sisters and brothers—never to be legally permitted to contact them again—even upon your deathbed? This is just one of many examples of red tape adoptees are forced to contend with. This book reveals the making of the current child welfare system. The pioneers who built and profited from the industry continue to deny adoptees access to documents that could lead them back to their families. This book protects you against adoption profiteers and traffickers who profess God is on their side.

The personally harrowing and medically enthralling story of a family's struggle to save a child from a deadly immune deficiency. A journey through the deepest valleys and highest peaks of parenting. When a two-month-old baby falls ill, his apparently ordinary symptoms turn out to signal a rare...